Would you like to GET INVOLVED and make a difference to the health of blood donors by working with us on our research programme?

Patient Public Involvement & Engagement Strategy

Patient and Public Involvement and Engagement – regular interaction between researchers, the public and key stakeholders leading to informed research ideas, improved communication of research topics and outcomes, and the rapid translation of findings – is fundamental to our research.

We are committed to Patient and Public Involvement and Engagement – both in the strategic development of the Blood and Transplant Research Unit and the individual research projects – as a means of enhancing research quality and relevance.

We need the views, experiences and insights of donors, stakeholders and the public at large to ensure that our research meets the needs of donors, NHSBT and society. We believe it is invaluable to work with a group of lay representatives to provide projects with an independent lay perspective on the acceptability of work proposed and to make suggestions to adjust projects to ensure we account for the challenges and impacts of blood donation that can’t be captured through routine donation sessions/questionnaires and reporting structures.

GET INVOLVED – we are looking for members of the public to join our panel of lay representatives either as part of our Advisory Group or as part of our Advisory Committee.

Advisory Group – members review and comment, via electronic means, on various reading materials related to the National Institute for Health Research Blood and Transplant Research Unit (NIHR BTRU) in Donor Health and Genomics at the University of Cambridge. Core responsibilities are (note: this is not an exhaustive list, but an indication):

  • Reviewing draft documents, such as leaflets, in electronic format sent by email:
    • Clarity of document content?
    • Format of document?
    • Is it easy to understand?
  • Providing feedback on possible research questions
  • Providing feedback on documents via electronic questionnaire

Advisory Committee – members attend a range of scientific research meetings for the NIHR BTRU in Donor Health and Genomics at the University of Cambridge, relating to various research projects. Core responsibilities for this role are (note: this is not an exhaustive list, but an indication):

  • Attending various committees or meetings, held approximately every 6 to 8 weeks
  • Preparing for meetings by reading some preparatory paperwork in advance
  • Respecting the viewpoints of others in the group
  • Providing comments or asking questions during the meetings

Your Commitment – these are voluntary groups. Your level of involvement is up to you and you are able to opt out at any point, with your decision having no bearing on how you are treated by NHS Blood and Transplant. You are not obliged to respond to all communications if you do not wish.

Training and Skills Required – there is no need for specific skills or training in order to GET INVOLVED.

Data Security – your personal information will be held on a database that can only be viewed by authorised members of the Blood and Transplant Research Unit. Your details will be used to send you information by email relating to the Advisory Group. Your details will not be passed to third parties without your permission.

GET INVOLVED – to join us is as simple as sending your details to: donorhealth@medschl.cam.ac.uk

 

Should you have any questions or concerns you can raise them at any point by emailing us at: donorhealth@medschl.cam.ac.uk